10 Nice Things to Do for Your Duchenne Mom

New blog: Did you know that you’re your Duchenne Mom’s main caregiver too?  It takes great courage, focusing on others while facing immense adversity, but if you utilize your hardships to make the world around you a better place, it creates worthiness in suffering.  Your mother didn’t just sacrifice her time caring for you.  She gave her life, and it’s always time to give back.  What can you do for her?  The following are some of the things you can easily do.

a bittersweet fairytale

The no holds barred, brutally honest yet adorkably hilarious look into Ricky’s unconventional life with Duchenne muscular dystrophy.

Duchenne Tip of the Week

If your non-ambulatory child is having pain in the soles of his feet, it means they are probably twisting inwards due to tendon contractures. The pressure from the wheelchair footrests is the cause of this, so talk to his occupational therapist about getting fitted shoes.  For the time being, however, he could wear soft, plush slippers and put them on a cushion to have a bit of comfort.

Romance Tip of the Week

Going into a relationship is not about telling her you love her as soon as possible. Sit next to her and have a conversation.  Sometimes, the simplest things are the gateway to a realm where you may be graced with the privilege of discovering and rediscovering her for the person she is.  Take the time to unwrap her heart, one whisper at a time.  Be content that she exists in your life and let everything happen naturally.

Cooking Tip of the Week

Tired of melting Popsicles making a mess? Use Jell-O!  Just make your regular mixture with your favourite flavours, but instead of the refrigerator, pour it into your moulds and freeze.  Soon, you and your family will have a handful of treats without the hassle!

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10 Nice Things to Do for Your Duchenne Mom

10 Nice Things to Do for Your Duchenne Mom

Amid the immense obstacles of Duchenne muscular dystrophy, it’s easy to forget that the ones caring for us are dealing with not only difficulties, but an impossible task.  Our main caregivers, usually mothers, manage the unmanageable, which is crucial to bear in...

Un-breaking a Woman’s Heart

Un-breaking a Woman’s Heart

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My Love Letter to Love

My Love Letter to Love

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The Fractures of My Unbroken Heart

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Where does my heart go when romance consumes my mind?  I have absolutely no idea sometimes, to be perfectly honest.  I just want to be numb of the feelings so I might find my smile.  Yet no matter how hard I try, it gets me nowhere because every time she comes into...

This is My Life: Trouble with the Curve

This is My Life: Trouble with the Curve

It’s funny how memories unfold in the presence of music.  Whenever I hear Aerosmith’s Crazy, I’m reminded of the summer of ‘94… At around ten years old, the progression of Scoliosis (a common side effect of Duchenne muscular dystrophy) began to affect the curvature of...